HIV/AIDS Program

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Overview

The HIV Program coordinates statewide HIV prevention and care services for Iowa residents. The program consists of these components: Prevention, Care & Support Services, and Data & Disease Reporting.

HIV in Iowa Fact Sheets 

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HIV Prevention Program

Overview

The Prevention Program works with local health departments and community-based organizations to provide free HIV counseling and testing services, health education and risk reduction activities, and health communication/public information activities for populations that are disproportionately impacted by HIV. The Prevention Program also provides services for newly diagnosed people, including counseling and testing of partners; referrals for medical care, case management, and other support services; and counseling on protecting their partners from acquiring HIV.

HIV Prevention Resources

HIV Program Resources

Program Data

2024: Condom Distribution Program Snapshot (343.4 KB) .pdf

2024: ITS HCV Screening Program Snapshot (409.83 KB) .pdf

2024: ITS HIV Screening Program Snapshot (393.65 KB) .pdf

2024: ITS PrEP Screening and Referral Program Snapshot (249.04 KB) .pdf

2024: PrEP Navigation Services Program Snapshot (280.85 KB) .pdf

2024: Supplies Intended to Reduce Harms Program Snapshot (446.05 KB) .pdf

2024: Total Program-Supported HCV Screening Program Snapshot (298.21 KB) .pdf

2024: Total Program-Supported HIV Screening Program Snapshot (295.05 KB) .pdf

Prevention Needs Assessment Report

An updated Prevention Needs Assessment Report will be available in 2026.

In 2019, the Prevention Program administered the first Prevention Needs Assessment (PNA), which focused on identifying the gaps in prevention services in Iowa and the tools that are most needed to keep people from acquiring HIV, STIs, and viral hepatitis. The survey collected information from people who were not living with HIV or who had not been recently tested about their needs and barriers to services and care. The 2019 PNA data have been used to establish a baseline assessment of awareness, access, and attitudes around HIV prevention tools in Iowa.

The 2019 PNA results are presented as a series of fact sheets that can also be distributed individually. 

Contacts

  • Holly Hanson, HIV and Hepatitis Section Supervisor: 515-380-6942
  • Elizabeth Kimutai, HIV and Hepatitis Prevention Program Manager: 515-829-6600
  • G. Heath Johnson, Prevention Services Coordinator: 515-443-5806
  • Jennie Wonderlin, HIV & Hepatitis C Prevention Program Evaluator: 515-201-3525
  • Liz Sweet, Systems Integration Coordinator: 515-217-1897
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HIV Care & Support Services

Overview

The Ryan White Part B Program, which includes the Benefits and Drug Assistance Program (BDAP), collaborates with local health departments and community-based organizations to provide health insurance, medications, and essential health and support services to people living with HIV.

The mission of Iowa’s Ryan White Part B Program is to meet the healthcare needs of people living with HIV by funding primary health care and support services. This includes providing direct access to health insurance, dental insurance, and treatment medications through BDAP.

Other services include case management, oral health care, nutrition assistance, emergency financial assistance, housing assistance, mental health services, and treatment for substance use.

Ryan White Part B Program Overview (214.25 KB) .pdf

Benefits of Ryan White Part B Services in Iowa (162.34 KB) .pdf

Client Services

Twelve agencies throughout Iowa offer client services, including case management, transportation to and from doctor's appointments, assistance with medical and dental bills, assistance with substance use and mental health treatment, and other supportive services. Case managers assist program participants with managing their medical care, working with them to make and keep appointments, managing other aspects of their lives, and achieving adherence to their HIV-related medications. Adherence is essential to help avoid developing resistance to the medications and to optimize health outcomes.

Benefits and Drug Assistance Program (BDAP)

The Ryan White Benefits and Drug Assistance Program (formerly known as ADAP or AIDS Drug Assistance Program) provides access to and assistance with the costs of health insurance and treatment medications. The BDAP Medication Formulary includes most medications, even those not related to HIV. 
Benefits specialists across the state help people with HIV find their best benefit homes, including dental services and services for people in jail. Please contact a client services agency in your area or the state BDAP office ([email protected]) for further information.

More Resources and Information

Ryan White Program Reports

Care Needs Assessment (CNA)

An updated Care Needs Assessment Report will be available in 2026.

In 2019, the Ryan White Program administered its fifth Care Needs Assessment (CNA) survey, following those completed in 2005, 2008, 2011, and 2016. The purpose of this survey was to improve care services across the state for people impacted by HIV.

The CNA results are presented as a series of fact sheets. The fact sheets may be used and distributed individually.

Iowa Ryan White Part B Annual Report

The Iowa Ryan White Part B Annual Report provides information on Part B program services, program participants, and health outcomes for those who participate.

Contacts

  • Holly Hanson, HIV and Hepatitis Section Supervisor: 515-380-6942
  • Brittany Kuehl, HIV Care Program Manager: 515-204-3746
  • Megan Guthrie, Client Services Coordinator: 515-322-8595
  • Roxana Ferreyro, Benefits and Enrollment Specialist: 515-336-1073
  • Dena Tollenaar, Benefits and Enrollment Specialist: 515-721-3241
  • Mariah Karumuna, Ryan White Data Coordinator: 515-601-2997
  • Denise Montgomery, Ryan White Quality Coordinator: 515-954-0860
  • BDAP office general email: [email protected] 
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HIV Data & Statistics

Overview

The HIV Data Program collects, analyzes and compiles data on the HIV and AIDS epidemic in Iowa. Reports are issued to characterize the populations that are most impacted in terms of geography, race and ethnicity, sex, age, and mode of exposure. These data are essential tools for planning and evaluation of prevention and care programs, and for ensuring that state and federal funds are prioritized for those most in need and most affected by the epidemic.

The reports include the number of people with HIV and AIDS, the number of deaths of people with HIV, and the number of births to women with HIV (i.e., perinatal exposures to HIV). Data are collected from healthcare providers, hospital and clinical laboratories, HIV programs in other states, and birth and death certificate review.

HIV Data Dashboard

The HIV Data Dashboard presents surveillance data on HIV disease in Iowa. This includes information on Iowa's HIV care continuum, HIV prevalence in the Iowa population overall and within population subgroups, people newly diagnosed with HIV while residing in Iowa and more.

To view the HIV Data Dashboard in a full window, click the icon of a diagonal arrow in a square in the bottom right corner of the frame below.

Surveillance Reports

Other reports can be found on Iowa Publications Online.

For more epidemiological data on HIV in Iowa, please fill out the HIV data request form.

Contacts

Joyce Mbugua, Data and Epidemiology Program Manager: 515-305-0225

Alagie Jatta, HIV Surveillance Coordinator: 515-322-8819

Nabila Adamu, HIV Surveillance Epidemiologist: 515-721-8486

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Community Planning and Engagement

HIV and Hepatitis Community Planning Group (CPG)

The HIV and Hepatitis Community Planning Group (CPG) is composed of people who have experience with HIV, STIs, and viral hepatitis, either because they belong to a population that is disproportionately affected by these conditions or because they work directly with people in these populations. Members of CPG include people living with HIV and/or viral hepatitis, health care providers, case managers, prevention service providers, educators, and people who represent populations affected by HIV and hepatitis.

CPG’s primary purpose is to act in an advisory capacity to the staff of the Bureau of HIV, STI, and Hepatitis at the Iowa Department of Health and Human Services (HHS), and the main task is to ensure that the state has an inclusive and participatory planning and evaluation process for the delivery of prevention and care services.

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For Health Professionals

Reporting of HIV cases—For Medical Providers and Laboratorians

In the State of Iowa, HIV and AIDS cases are reportable to Iowa HHS. By Iowa Code, both the clinician who ordered the test and the laboratory that processed the specimen are to report information to Iowa HHS. This information is confidential and protected by law; it can only be released in limited circumstances described in Iowa Code.

Forms for Clinicians

Please report the following cases; all directions are provided in the reporting form document:

For questions regarding submission of an HIV/AIDS case report form, please contact the HIV Surveillance Program at (515) 281-6918.

Forms for Laboratories

Iowa Confidential Laboratory HIV Reporting Form (236.02 KB) .pdf

Forms for Blood and Plasma Centers

Iowa Confidential Blood and Plasma Center HIV Reporting Form (217.44 KB) .pdf

HIV/AIDS Legislation Related to Public Health

Access the most current version of Iowa Code and Iowa Administrative Code.

Iowa Code 141A outlines the requirements for:

  • HIV testing, education, and consent;
  • Reporting of disease and laboratory information;
  • Notification of partners of people who test positive for HIV (partner services); and
  • Confidentiality of data related to HIV and AIDS

Iowa Code 139A outlines the requirements for:

  • Prevention of transmission of HIV from medical providers with HIV to patients (see 139A.22); and
  • Procedures related to exposures of care providers to HIV (see 139A.19).

Further detail on the implementation of these requirements can be found in 641 Iowa Administrative Code Chapter 11.

Partner Services

Disease Intervention Specialists (DIS) offer partner services to newly diagnosed people with HIV. A DIS works with the client to assist with notifying their partners of a potential exposure and can offer in-person testing services to the partners.  DIS also help to link newly diagnosed people to care, case management, and other supportive services. Healthcare providers can assist in this process by notifying their regional DIS when they have a patient in need of partner and linkage services. To be connected to your local DIS, call 515-281-3031 or view the DIS regional map. (866.16 KB) .pdf

Resources for Health Professionals

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